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RUN
FOR
REMI
5K
Join us on what would have been Rémi's 5th birthday, as we come together to remember, celebrate and honor the incredible impact he made on so many lives.
AUGUST 13th, 2026
6:30PM EST
NEWPORT, RI OR VIRTUALLY
On his birthday - and every day - we run for Rémi.
Post your photos and memories to keep Rémi's spirit shining bright.
Remembering Rémi
Rémi faced every challenge with remarkable courage, determination, and joy. This event is an opportunity to celebrate his life and remember the strength and light he shared with everyone around him.
Whether you run or walk - in-person or virtually - we invite you to take a moment on his birthday to reflect on the love, resilience, and inspiration he leaves behind.
Support Other Families in Rémi's Honor
In honor of Rémi and to support families facing similar medical challenges, we are raising funds for the Finian Summit Foundation, established in memory of Rémi's CICU buddy, Fin.
Every donation helps carry both boys' legacies forward and make a meaningful difference, supporting:
Financial grants for families facing medical hardship
Gifts and comfort items for children in the CICU
Adaptive equipment and mobility support
Special experiences and memory-making opportunities
Grants for in-home nurses to offset lost wages when patients are inpatient
Donate in Rémi's Honor
Every donation goes directly toward supporting heart warriors and their caregivers - filling gaps that are often out-of-pocket or otherwise go unmet.
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